Amee

Tristan Finally Starts His Growth Hormone Therapy September 16, 2011 – What can I say besides I am tired, but extremely thankful and excited about the future, and Tristan’s start of growth hormone therapy!  Thankfully today Michael was able to come with me and the kids (who by the way were so good I cannot … Read more

We Receive and Early Christmas Gift August 2, 2011 – The Christmas gift we didn’t count on:  Today the kids and I met Michael for lunch and while he was on his way to meet us he got an e-mail from Dr. Emily Germain-Lee who is at Kennedy Krieger Institute (KKI) in Baltimore.  She is … Read more

Growth Hormone Study Update March 25, 2011 – Today Tristan saw Dr. Germain-Lee, his pediatric endocrinologist, for a normal blood workup and an update on the growth hormone study, but more importantly it was because of the dramatic weight loss that happened to him 45 days ago.  He went from the 6th percentile to the … Read more

Developmental Update, New Pediatrician, and More Therapies February 8, 2011 – Well, first off THANK YOU for all the LIKES on Facebook, because it means there are many people out there who love and care for my son Tristan and his well-being, and it means the world to me.  I know many of you have been with me and Michael … Read more

Growth Hormone Testing and a New Direction September 5, 2010 – Well as many of you know, about a week ago Tristan had extensive growth hormone testing of his growth hormone level and other blood values due to his lack of growth and weight-gain for over a year.  It is good news and bad news.  … Read more

Tristan’s Endocrinology Update with Doctor Germain-Lee June 6, 2010 – Tristan had his quarterly endocrinology update appointment with Dr. Emily Germain-Lee the lady who specializes in people with Albright Hereditary Osteodystophy (AHO).  His overall endocrine-associated levels look good, but she is concerned about his overall slow growth.  It was six months since his last appointment … Read more

The Gluten Free Diet Change Results were Astounding Summer 2010 – I write this note because I know without a doubt now simply changing your child’s diet can change their world and yours.  The results of a gluten free diet change for Tristan were tremendous.  Many of you know by now Tristan is on the autism spectrum … Read more

We Finally Find an Albright Hereditary Osteodystrophy Specialist God Came Down from Heaven Today and Kissed My Son Tristan! We found an Albright Hereditary Osteodystrophy Specialist. Late January 2010 – Last Wednesday when Tristan received his autism diagnosis of PDD-NOS, his developmental pediatrician suggested we start to see another doctor who just transferred to the … Read more

A Gluten Free Diet to Help Autism Late January 2010:  At first I was skeptical about a gluten free diet.  Yesterday I saw a post from Autism Speaks on Facebook.  It addressed the issue of children who have autism, and that they often suffer from gastrointestinal (GI) disorders.  Tristan does not appear to have a … Read more

Tristan’s Autism Diagnosis January 19, 2010 – Well Tristan received a formal autism diagnosis today from his developmental pediatrician at the Kennedy Krieger Institute. Tristan’s specific diagnosis is Pervasive Developmental Disorder – Not Otherwise Specified PDD – NOS.  It is a long term for the fact they really do not know what is going on, … Read more